Thursday, 21 December 2023

Our team of 24 professionals from the neurology department, along with the KMSxELA initiative, successfully completed the challenge of running for 24 hours in the '24-hour Ultradistance' relay race to raise funds for Amyotrophic Lateral Sclerosis (ALS) research.

The enthusiasm of all those involved in this challenge led 141 runners to give their best on the athletics track, covering a total of 1,621 kilometers. The initial goal was to raise 4,000€, but thanks to the team's effort and the collaboration of businesses sensitive to the cause, they managed to raise a total of 9,600€.

The group of doctors, along with the KMSxELA initiative, brought visibility to this disease, garnering attention through media coverage and social networks during the event that began at 12:00 pm on Saturday, December 16, and concluded at 12:00 pm on the 17th.

Here you can see one of the news articles published on TVE.

Doctors Bernat Bertran and Pablo Villoslada from the Neurology Service of Hospital del Mar.

Throughout the weekend, doctors, family members, friends, and individuals affected by this disease were present at the athletics tracks to support this initiative.
This success would not have been possible without all of you, so THANK YOU FOR HELPING US FIGHT AGAINST ALS.

ALS

Amyotrophic Lateral Sclerosis, is a rare and complex disease, with an incidence in Catalonia of 2 cases per 100,000 inhabitants per year and a life expectancy of between three and five years. At present, there is no effective treatment, making research vital to change the natural course of the disease.

Hospital del Mar has an ALS Unit that provides a highly specialized multidisciplinary service in the diagnosis, treatment, and monitoring of people with ALS. With the involvement of neurologists, pulmonologists, nutritionists, rehabilitation specialists, occupational therapists, and psychologists, the team provides comprehensive care to patients, currently attending to about 50-60 patients per year. In addition to care, professionals are deeply involved in research, collaborating with other institutions and being part of the European research platform ENCALS and the TRICALS clinical trials.

With three ongoing clinical trials at the center, every donation becomes a step closer to the possibility of finding a cure and improving the quality of life for those affected by ALS. We encourage society to join the cause, supporting professionals in their fight against a disease that challenges hope.